I often get asked about why I fund raise for the Multiple Sclerosis Trust and now and again I get asked about what is Multiple Sclerosis and who are the the MS Trust, so I thought I should maybe write something up.
Now I am no health professional but I will explain things to the best of my knowledge, But please do go to the MS Trust website for further information go to https://www.mstrust.org.uk/
MS or Multiple Sclerosis is a neurological condition that affects the nerves in the brain and spinal cord, also known as the central nervous system or CNS.
There is no cure for MS MS is more common in countries further north or south from the equator
Symptoms can come and go and vary greatly in their impact on someone from day to day, or even from hour to hour
Although the effects of MS can vary greatly from person to person, the condition is often categorised into one of three broads types MS is an autoimmune disease which damages the protein coating of your nerves. The resulting patches of nerve damage (sclerosis) mean that messages don’t get passed along the nerve very efficiently or, sometimes, may not get through at all. Symptoms will correspond to the areas of your brain and spinal cord that have been damaged.
There is a wide range of possible symptoms but you usually experience only a small number around the time of diagnosis and you may never experience them all. Symptoms vary from person to person and from day to day. This can make MS unpredictable and can take some getting used to.
Some of the most common symptoms around the time of diagnosis are fatigue (a kind of exhaustion which is out of all proportion to the task undertaken), stumbling more than before, unusual feelings in the skin (such as pins and needles or numbness),slowed thinking or problems with eyesight.
Many of these symptoms may be invisible to other people.
At the moment there is no cure for MS but there are disease modifying drugs that reduce relapse rates and there is a wide range of possible treatments for symptoms which can be discussed with health professionals.
Although MS is a neurological condition, some of the symptoms may seem like nothing to do with your nerves. For example, you might think that difficulties with eyesight would be due to a problem in the eye itself. However, sight problems in MS occur because the condition has affected either the nerves from your eye to your brain (the optic nerves) or a part of your brain which controls or interprets vision.
The MS Trust funds research and ensures that people with multiple sclerosis have the specialist care and information they need to get on with their lives.
MS specialist nurses are vital in helping people living with MS deal with their diagnosis, consider their treatment options and adjust to living well with MS. They believe that every one of the 110,000 people living with MS in the UK should have access to an MS specialist nurse, the MS Trust are working with the NHS to fund new MS Specialist Nurses in areas that need them most. And, since 2000, they’ve provided the essential training for every new MS specialist nurse in the UK. They also support the multidisciplinary MS team with residential training, study days and the biggest annual conference for MS professionals in the UK.
How the MS Trust spend the money you donate
£6 funds one copy of an information book which can help a person with MS better understand their condition.
£8 the cost of sending Open Door (quarterly MS newsletter) for a year to one person.
£10 the cost to send Kids’ and Parents’ Guides to MS to a family affected by MS.
£15 the cost to send Making Sense of MS core information pack to someone recently diagnosed with MS to help them understand and come to terms with their diagnosis.
£15 funds one information specialists who provides essential support to a person with MS by telephone, email or via social media.
£100 the cost of providing the Making Sense of MS booklet to everybody diagnosed with MS in one week.
£238 per week to send a weekly comprehensive research update which provides an up-to-date review of developments in the world of MS research.
£250 per day for the MS Trust’s MS Nurse Specialist Advisor, who plays a crucial part in the campaign to improve the quality of services available to people with MS.
£411 the average cost of providing an MS nurse with the publications and fact sheets they distribute to patients in one year.
£751 for a health professional to attend the annual conference, which brings together over 300 multidisciplinary health and social care professionals who share a commitment to improve MS care.
£940 funds our personal enquiry service for one week.
£1,765 to fund a newly-appointed MS specialist to attend our week-long foundation training in MS care.
So as you can see, the MS Trust is a tiny charity doing a massive job to help everyone in the UK living with Multiple Sclerosis, and every penny raised is crucial to support their work.
when I lost my Sister Kathleen to MS I vowed to keep her name alive to do all I can to help those living with MS and to make a difference to everyone effected by MS
Please support my challenge and kindly donate to this link https://uk.virginmoneygiving.com/kennysmith
charity number: 1088353
Registered as a limited company in England and Wales 4247766